Living with epilepsy my story
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Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
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jennnel New - Jakey's Story
Created by jennnelat1/5/09 - 7:46 pm|1 View
Jakey developed seizures at 21 months, generalized seizure disorder.
Currently at 4-1/2 we are dealing with behavioral issues.
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ToDdO New - Assaut from work.
Created by ToDdOat1/5/09 - 7:32 pm|2 Views I work at a residential treatment center for teenagers and got assaulted by one of my residents. I ended up getting my head banged against a door/wall of the quiet room.
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Niyati New - A Photosensitive Girl
Created by Niyatiat1/5/09 - 4:13 am|7 Views
About my Experience on Photosensitive Epilepsy
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Becka_77 New - Dealing with epilepsy
Created by Becka_77at1/4/09 - 6:24 pm|7 Views Don't really know what to say,I have been dealing with epilepsy since about the age of 5. The doctors said it was brought on by a trauma to the head.
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tstrong New - My seizure saga
Created by tstrongat1/4/09 - 4:35 pm|7 Views 60 year old male, retired Army helicopter pilot, retired helicopter pilot, 37 years of helicopter pilot experience; unemployed;
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isabel... New - Isabella
Created by isabel...at1/4/09 - 12:06 pm|4 Views Isabella is 3 years old and has been suffering from simple partial seizures on the right side of her body and ESES for over 1 year now due to cortical dysplasia on her left temporal lobe. Surgery might be the next step.
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dianak | ||||
rwb1213 New - Not Seized by My Seizures
Created by rwb1213at1/3/09 - 3:43 am|1 View In order to achieve and determine the possible, I was called on to attempt what appeared to be impossible. With determination and effort, I've achieved satisaction in a mere fraction of a lifetime and shall eclipse he who'd achieve nothing if he were able...
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blonde1 | ||||
joey77 New - Disheartening...
Created by joey77at1/2/09 - 9:23 pm|12 Views
Continued seizures despite different meds trialled; effects on work and personal life
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Channi... New - there's more to life
Created by Channi...at1/2/09 - 1:07 pm|2 Views I was diagnosed with JME in 2001. I like skiing and horse back riding. I am in tenth grade. I have a dog, older brother, and travel the world with my grandma.
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jitterbug New - Wont get me down....
Created by jitterbugat1/1/09 - 6:32 pm|9 Views I am a 33 yr. old female diagnosed with myoclonic seizures two years ago. Meds are very important, especially if you have the correct ones. Dont let it get you down.
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kle New - Why now?
Created by kleat1/1/09 - 3:34 pm|22 Views I had my first seizure that I know of at the age of 37. Seems to have been a full tonic-clonic seizure follwed by another less severe seizure 14 months later....
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gail e... New - my epilepsy/vertigo
Created by gail e...at1/1/09 - 7:55 am|4 Views How this has changed my life
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mojo78 New - Laura Cunningham
Created by mojo78at12/31/08 - 8:05 am|9 Views I am a mother to an 8 year old daughter, Sara, who has had Epilepsy since she was 14 months old.
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blueal... New - and so it has begun
Created by blueal...at12/30/08 - 11:15 pm|18 Views
Although this section is entitled “my story” I fear that the
my own personal story has only just begun. You see a year ago, or even a few
months ago I wouldn’t have even thought twice about epilepsy. I knew that seizures
were something...
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mitch_... New - the worst times of my life
Created by mitch_...at12/30/08 - 1:39 am|12 Views this is the journey of my son having seizures. It started so fast. And my biggest problem right now is that i dont have an insurance. I dont know how can i get through this. Im really breaking down.
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propag... New - 3rd Seizure in a year and a half
Created by propag...at12/29/08 - 2:49 pm|6 Views I'm 16 years old and I've had 3 seizures. My last seizure was last week. I have somewhat low blood pressure.
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TIFFANYP New - TIFF PERRIN
Created by TIFFANYPat12/29/08 - 12:36 pm|8 Views
living if hubby with seizure at 28
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Dragon... New - Married to a Madman
Created by Dragon...at12/29/08 - 10:08 am|10 Views I'm a 29 year old mom of two small children, married to an epileptic, and learning more about this problem every day, and wishing I could do something about it. Learn a little about me and mine.
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Babelo... New - Me n my life with epilepsy.
Created by Babelo...at12/29/08 - 4:43 am|9 Views My story is about me and having this in my life.
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mommyo... New - completly unexpected
Created by mommyo...at12/28/08 - 1:54 pm|2 Views
my daughter who was four at the time started haveing siezures out of the blue.with no brain trauma or illness.
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lorayg New - My Daughter
Created by loraygat12/27/08 - 8:18 am|14 Views Our story about my daughter's journey so far with epilepsy.
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keppra... New - my heart goes out to you
Created by keppra...at12/26/08 - 5:03 pm|12 Views 31 years of seizures a life lesson.
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john b... | ||||
INACLA... New - My life
Created by INACLA...at12/25/08 - 9:23 pm|9 Views I'm coping. Been there done that trying to keep my seizures controlled and after years of meds have a head of thin azz hair that when I think about it long enough I want to cry until my tear ducts dry up. When I think about passing this monster called...
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beckyl... New - i have been epileptic since i was 14
Created by beckyl...at12/22/08 - 10:08 am|4 Views hi my name is Rebecca i have been epileptic since i was 14 years old with different medication changes i am now 18 im 19 in febuary and still having seizures
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Carola... New - Epilepsy is my passion
Created by Carola...at12/22/08 - 8:43 am|13 Views I am located in the Fort Wayne, Indiana area where I travel within 13 counties.
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unique... | ||||
becca9... New - My John Wayne
Created by becca9...at12/21/08 - 6:59 pm|11 Views Absence seizures in my 4 yr old.
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keenas... | ||||
nitabe... New - Unsure of what to do
Created by nitabe...at12/20/08 - 3:26 pm|18 Views Swiched from depakote to lamictal and REALLY regret it.
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kellyann New - I think my 10 month old is having seizures
Created by kellyannat12/18/08 - 11:11 am|11 Views I think my son is having seizures. Please help I need advise
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rfrenc... New - My 2 yr old granddaughter
Created by rfrenc...at12/18/08 - 6:45 am|6 Views Uncotrollable urge to cross and stretch legs that sometimes causes "charlie horse" in calf(s).
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wolfss New - Another Major Seizure need advice
Created by wolfssat12/16/08 - 7:09 am|40 Views Just had a major seizure and alomost died I was in ICU for 11 days and on life support for 6 of that.
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belazo New - KEPPRA WORKS WELL FOR ME
Created by belazoat12/13/08 - 11:46 pm|27 Views MY BODY IMMUNE SYSTEM AND FINESS MAY BE PLAYING MAJOR ROLES IN OVER COMING SOME SIDE EFFECTS RELATED TO TAKING KEPPRA MEDICATION
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numiscent New - The ecstacy of my seizures
Created by numiscentat12/12/08 - 9:13 pm|14 Views I do not know if I have epilepsy. Ive always suspected it was from when I first read about it in a medical book, but i was afraid to get an evaluation in case I would not be allowed to drive.
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Dtiller New - Off to work I went one day
Created by Dtillerat12/12/08 - 1:38 pm|34 Views I worked at Oregon State Hospital working with all different types of individuals with challenges then I became a patient due to being attacked by a patient.
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ugtahb... | ||||
MayMay New - MayMay's life
Created by MayMayat12/11/08 - 11:45 am|7 Views I was diagnosed with an Oligodendroglioma brain tumor when I was 24 and have been on Dilantin since day one. Lamictal was added to the list several years ago.
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renewells New - Epilepsy
Created by renewellsat12/10/08 - 9:57 am|22 Views
Friends drinking and playing cards every weekend or so and I usually have 2-3 mixed drinks (vodka).
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smallt... New - I am a 27 year old male with epilesy
Created by smallt...at12/9/08 - 10:46 pm|18 Views I have been epileptic all my life but as of recently my seizures have gotten worse. I think I have pinned down the triggers. Hell, it only cost me a six figure job, my drivers license, my car and my lifestyle.
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AKEMPERS New - My life so far with epilepsy
Created by AKEMPERSat12/9/08 - 3:09 pm|12 Views 4 months ago I felt great, I could drive and having a headache was an everyonce in awhile thing. But it all changed seemed like over night. I started feeling disoriented, started having migraines every single day. My vision was off, felt dizzy and light...
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peagreen New - epilepsy or not?
Created by peagreenat12/9/08 - 2:23 pm|21 Views
Can anyone shed any light on what might be happening??
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Markita New - Me, Myself and Seizures
Created by Markitaat12/9/08 - 12:54 pm|6 Views
I would not have thought seizures would've took controlled over my life like this!
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gaby410 New - A little bit of me..
Created by gaby410at12/8/08 - 3:03 pm|6 Views This is definitely not my id or the one thing that describes who am I, but it has change so many things in me, in the closest people like friends and family so you can pretty much tell that if I shake it of I would be shaking of a huge piece of my history...
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