Anyone with Epilepsy living in Hampton Roads VA
 |
|
|
Groups
Search Groups
To find a group or topic of interest, enter a username or keyword in the box below.
To find a group or topic of interest, enter a username or keyword in the box below.
Get and stay connected with other epilepsy.com community members who share your interests, concerns and passions. Create a virtual meeting place and deepen your connections using the Community Event Calendars, Group Discussions and Shared Member Blogs. Below, you can see the most recent Groups, and the latest activity within the Group Discussions. Browse around and if you don't see a Group you are looking for, log-in and click "Start a New Group." Your Group can be open to the public or private (by invitation only). There is no limit to the size of your Groups or what topics your Groups are based on! If you are not logged in, register now! Learn more about joining and participating in Groups in our Groups Help Section.
Group Index
| Discussions | Members | |||
|---|---|---|---|---|
 | 1 | 1 | ||
| 0 | 2 | ||
New - young adults(not teens) 21-25 yr olds
were we whom are 21-25 can talk about things that pretian to us not older or younger pepole
 | 1 | 4 | ||
 New - Eastern NC Epileptics
Agroup for people in the eastern NC area who want to meet other epileptics near you
| 1 | 1 | ||
 | 1 | 2 | ||
| 0 | 2 | ||
| 1 | 9 | ||
| 0 | 1 | ||
| 0 | 1 | ||
| 1 | 9 | ||
| 1 | 9 | ||
| 15 | 50 | ||
| 0 | 6 | ||
 | 1 | 9 | ||
| 0 | 2 | ||
 | 1 | 14 | ||
| 0 | 15 | ||
 | 1 | 9 | ||
| 2 | 12 | ||
 | 4 | 3 | ||
 Epilepsy Innovation Summit May 2008
Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
| 1 | 5 | ||
 Northern Virgina Support Group
Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
| 1 | 6 | ||
Epi-teens
A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
| 1 | 14 | ||
 | 1 | 4 | ||
 living with epilepsy and ASD....autistic spectrum disorder
this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
| 3 | 12 | ||
 | 1 | 12 | ||
 Mormons Living With Epilepsy
This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
| 0 | 6 | ||
 | 16 | 65 | ||
Women and epilepsy
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start...
| 8 | 64 | ||
| 1 | 6 | ||
 Wearable Seizure Detection
Our group will explore technologies and developments to enable a practical seizure detector that can be used in everday life
| 6 | 15 | ||
Anti-epilepsy treatments: What's new?
Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
| 4 | 19 | ||
| 2 | 6 | ||
| 8 | 19 | ||
 | 20 | 28 | ||
| 3 | 30 | ||
| 10 | 21 | ||
 Experiences with Simple Partial Seizures
This group is for people to share their experiences with simple partial seizures with others.
| 3 | 34 | ||
| 0 | 6 | ||
 | 12 | 18 | ||
| 0 | 12 | ||
 Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Epilepsy due to Viral Encephalitis
| 2 | 9 | ||
Spousal support group
to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
| 8 | 20 | ||
 | 0 | 9 | ||
| 1 | 5 | ||
 | 40 | 91 | ||
| 1 | 41 | ||
| 3 | 8 | ||
| 1 | 10 | ||
| 8 | 10 |
Group Activity
 zetalov2 New - new
I have been epileptic since age 7, am 28 now. I just want to chat, I have new concerns and would like to share and compare. Thank you.
|
 cittauk New - Jan needs help urgently
I have had a very worrying email from Jan, a special lady who is a member of this site. Her user name is ROCKNROLL. I am extremely worried, she lives alone and it is very clear in her email that she is in a desperate situation in need of medical attention....
|
 denisse New - pms
Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
|
 Colina New - Groups
Hello hello.
In the groups section I have noticed that the new posts do not say which group the post is in. Is it possible to add that?
TY Colina
|
 steele... New - Hi
I my name is Erica and I live in Carrollton. I am seen at NMC Portsmouth. I was diagnosed on November 20, 2008. I would like to talk with others from this area who have E.
Happy New Year,
Hugs,
Erica
|
kgrant New - Pregnancy and getting pregnant
Hi All
I am a 33 years old and have been Epileptic since i was 14. It took a long time to get my seizures under control and only when i went onto Lamictal did i manage to control both the absences and tonic-clonic seizures i have. Two years ago my husband...
|
adarley |
Colina New - Has anyone heard from?
Hi there friends!
I started this discussion because many times I wonder about members/friends who just seem to have dissapeared. Usualy there is one person out there who knows how they are doing and can pass on a message.
People do come and...
|
 spiz New - Favorite Commercials/ Most Aggravating Commercials
From the ones you love to like to the ones you love to hate...let's hear them!
|
 LCdanc... New - Lamictal
I have been taking Lamictal for about 8 years now and it has been extremely successful. I am on a pretty high does 900mlg. but my seizures are well controlled and eventhough i do get scared sometimes i havent had a sezire in about 6 years. I have also talked...
|
dmirbe |
 JayBri... New - Introduce Yourself
I just thought we might want to inroduce ourselves, so if you feel like it, here's the place to do it! I'll start.
|
kellbe... New - Simple Partials & Deja Vu
Hi All,
I am 28 years old and began having partial seizures early August 2008 due to an epidermoid tumor. The seizures led to an MRI where the epidermoid was found. I had an EEG which one neurologist read here in Alaska stating that epileptiform...
|
echo New - Benign Rolandic Epilepsy --Is it really benign? -devleopmental problems?
Hi LaraHj,
I'm having some trouble figuring out how to navigate this site... I hope this reads as a response to your post, as that is what I intend it to be!
|
moriendi New - Pregnant and Scared- Am I Epileptic?
Ok Ladies,
I need some help here becuase I am a little scared and confused.
I am 27 weeks pregnant with my first child. I never even really gave
epilepsy a thought until I had two very distinct experiences- one in
week 24 and one last night.
|
colejames |
Lanson27 New - Newbie...
Heah there, i'm new to this... well that's not strictly true...
As i'm not really sure where to start i'll bore you with a quick rundown...
As a child I suffered with High Fibral illness, as an adolesent I struggled with depression and...
|
 Caroli... New - Just moved here
My name is Brittany and I moved to Robersonville NC after living in CT for my whole life of 29 years.I am living with my parents because I cannot work and if I have a seizure with nobody there who knows how bad I would be hurt.I have had times when I fell...
|
spiz New - Seizures - Your Earliest Memory Of Them
Share the memories of your earliest experiences of seizures.
|
HHC New - Any of you live in SoCal
I live in orange county and was trying to see if there are any of you local
|
spiz |
spiz New - Chat Room Slang
There is so many slangs and acronyms used in the chat room. Let's see how many we can put here to help each other learn them. Make up some of your own too!
Please do not list any that are offensive. Thank you!
|
HHC |
angie0... New - So frustrated and confused
Hello Everyone!
I am new to this group and hope that someone out there can give me a little input. I know that this post is a little long, I gave a lot of details so that it may help you understand.
|
 zachsm... New - My Son Zachary
My son is almost 3 years old now. He started having seizures at the young age of 4 months and was diagnosed shortly afterwards. He has been on medication since he was 5 months old and the seizures still havent stopped. When His seizures first started the Doctors...
|
 warren7 VNS Update at the Epilepsy Innovation Summit May 7 2008
VNS
Reese Terry, Cyberonics
Epilepsy Innovation Summit
May 7, 2008
Overview
- 70 years of research suggests VNS can interrupt seizures
- FDA approved 1997
- 50,000 implants todate’
Efficacy
- main effect seem to be a gradual increase in sz threshold...
|
 Rishi ... |
Rishi ... I am a person living with E
hello everyone ,
i am a person who lives with E daily i wud like to to know its like for a spouse how easy or hard ???
|
Rishi ... I am a person living with E
hello everyone ,
i am a person who lives with E daily i wud like to to know its like for a spouse how easy or hard ???
|
Rishi ... I am a person living with E
hello everyone ,
i am a person who lives with E daily i wud like to to know its like for a spouse how easy or hard ???
|
Rishi ... I am a person living with E
hello everyone ,
i am a person who lives with E daily i wud like to to know its like for a spouse how easy or hard ???
|
Rishi ... I am a person living with E
hello everyone ,
i am a person who lives with E daily i wud like to to know its like for a spouse how easy or hard ???
|
denisse pms
Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
|
 caregi... Im a Wife to a Husband with Seizures...looking for others who struggle daily
Hello everyone
Im a wife to a husband who started with E. 4 years ago this past February 14th....6 months after we were married.
|
 kacierees Am I alone?
Well where do I start... my fiance has epilepsy and it is all so new and scary to me.
We met a little over three years ago, in college. Everything was moving along perfectly. I graduated and began teaching and coaching while he finished up his...
|
codysmom |
sdavis864 TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
|
sdavis864 TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
|
sdavis864 TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
|
 btoogood seizure free
hey there guys from a rough patch i have had a heap of seizures, but up untill november 26th last year till present i have been seizure free, the only problem is that i have heapes of side afects espically to my lamictal.
|
sorfor... i desprately need HELP!!!!
hi everybody,i`ve been struggling with epilepsy for 24 yrs now(i`m 31)...u can`t imagine how many doctors i`ve seen & how many prescription i`ve tried but nothing is working!!!!i had epilepsy since i was 7 but i was 1st diagnosed with petitmal at the...
|
josiesmum New Here- 2.5 year old, Helmet? What do I tell her?
Hi there. I have a 2.5 year old little girl who is still in the process of getting a defined diagnosis, current thought is that it is MAE.
Anyhow, she is having drop seizures and they are progressing to the point where I think she may need a...
|
Meow |
LDIEGU... |
bookbabe does anyone experience irritability as a symptom of temporal lobe epilepsy?
Up until my TLE diagnosis, my periodic symptom of irritablility (not being cranky, more like stimuli or small annoyances make me feel like screaming) were considered to be symptoms of my bipolar II disorder. My neurologist indicated that they could be TLE...
|
Chriss... |
keekeeD Rett & Atypica Retts
I am new to this site, and was very glad to see a thread for Retts!
I would love to talk with other families who have a child with Retts, particularly girls & boys that were tested for MecP2 gene that came back as normal.
My daughter was...
|
 brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
|
brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
|
brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
|