A place to get information and share information and ideas on the new Epilepsy Journal that is going to be published by epilepsy.com. This forum includes information on how to volunteer to be a part of it. THIS FORUM IS NOT FOR POSTING YOUR PERSONAL EPILEPSY STORIES.
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Forum Activity
 TSL1221 |
 madhou... |
JulieB... New - Seizures During Sleep Only??
I'm 41 & was diagnosed with Temporal Lobe Epilepsy several years ago after a single EEG showed sharp waves. The Neuro put me on Topomax. I removed myself from it. Went for another EEG which was within normal limits. I have not had issues with...
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jeffre... |
 aneetw New - drop seizures- ho wwould I know?
My son has balance issues to begin with, but I notice he is falling more-and falling hard. Once or twice he moved a little, but lay there as if stunned, other times he gets right up. He is nonverbal, so can't describe what is happenning. How would I know...
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 Dana1975 New - Suicidal thoughts & impulses??!!
This past summer I noticed I started having vert strong suicidal impluses. I was on 1500 mg of Depakote ER & 800 mg Carbamazepine when they began. I have them on & off & they are quite random. I am now on 1500 mg generic Depakote, 800 mg Cabamazepine...
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aneetw New - Landau Kleffnar syndrome
I was hoping someone could tell me what this really looks like. My son is five, cannot speak, and has frequent seizures, mostly while he is sleeping. We can't seem to get a firm diagnosis on any of his issues. The neuro says he can't rule out LKS, but...
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ronile67 New - has generic Keppra caused more seizures for anyone else?
Keppra's generic version came out sometime in November. I went to refill my subscription and without my O.K. I was given the generic, (some word I can't pronounce). I noticed it and assumed it was exactly the same. I had a Tonic-Clonic on the 1st of Dec. then...
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 confuzzed New - Question about Auras
Has anyone noticed a few hours or so before having a seizure that they're having difficulty with speech, coordination, and thinking? This happened to me yesterday.
Woke up yesterday morning and felt like I had a case of the all-over stupids. Was...
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LondonRob New - does this sound like simple partial seizure to you?
Hi to all members of the forum
At long last i think i may have realised via this and another website that what i first experinced when 18 (23 years ago!) was a type of simple partial seizure. I would be grateful for members views as to whether this could be SpS.
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 ETP |
 Jenny55 New - Rt Temporal Lobe Seizures
Would apprecaite any feedback from anyone who has had a right temporal lobectomy....
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 ahardway New - Blood Inside your ears during post surgery recovery period?
I Had surgery done to my Left tempral lobe this passed November 4th 2008. It is now December 13 2008 making it 6 weeks since. All of the pain from where they cut into my brain and skull as well as the pain on the left side of my jaw line is over, but last...
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naiana New - SAFETY - child and seizure during sleep
After two years without seizures, my 5 years old son had a seizure while sleeping, and it took more than 30 minutes to stop. I am terrified. How to let him safe during sleep? Is it safe to let him sleep in his own room, all alone? A baby monitor with video...
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cutty New - Smoking marijuana and drinking
I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if...
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 paigeg |
Furtive New - New to epilepsy.com
Hi everyone, new member here. After being on Keppra for over a year, I figure I'd join here and share whatever insights I can. I was diagnosed as epileptic about a year ago after my third grand mal seizure. I'm 36 years old and have been on Keppra since...
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pewter New - Odd thing.. could it be a type of seizure?
I know no one can say for sure but would like some input. The other day I had what seemed like a brief spell of my eyes crossing and then I felt intense tingling and burning from the top of the left side of my head, down to the middle of the left side,...
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madhou... New - first aid for seizures
Hi all
I know the first aid is to make sure the airway is open if the person is having a seizure and has fallen to the floor, but what if its a partial seizure? my son doesnt fall to the floor but he drools alot he has had 2 seizures and we make...
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confuzzed New - Seizures and one-sided weakness
Out of idle curiosity, has anyone had this? I'll notice some mornings that my right side will be weak when I wake up. Not profoundly so, but enough to get my attention and make walking a bit interesting.
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 depres... New - Constipation after taking Omega-3?
Hi all, would like to find out whether it is normal to experience constipation after taking omega-3? my bf used to have quite a regular bowel system, but after taking thee omega-3 pills, he found that his stool is quite hard and his...
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WVMom New - Low Glycemic Index Treatment for Absence Seizures
I am very interested in trying the Low Glycemic Index Treatment to control my daughter's absence seizures. Unfortunately, her neurologist seems resistant to anything "new" and options are limited in our city. I understand that treatment centers...
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 stephs... New - Epilepsy and Demonic Possession...or something of the sort
Has anyone had problems with religious family members whipping out Mark 9 (the chapter where Jesus heals a boy who apparently is having seizures of some sort), then declaring that you must have demons in you, or you have spiritual unrest, or are somehow...
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blueal... |
 IR New - Can't walk out of epilepsy shadow
I am a 27 yrs old girl this year. i had mild fits when i was 9 yrs old. it came so suddenly. im on medication, n could not go for swimming with school or join some activities. My fits did happen in school, but i will go to somewhere corner to hide. but teachers...
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georgi... New - Altitude and seizures in our toddler
Hi, everyone -
Our 3 year old son has just had 3 afebrile tonic-clonic seizures - July 15th and two on October 15th. Clean EEG, clean MRI. We flew in a plane twice the day of the 1st seizure and came back from a day and a half...
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rosewi... New - Can glowsticks trigger seizures?
I was wondering, im having a birthday party next week, will glowsticks cause siezures?
my best friend gets them, but she has no idea if it will affect or not!
any info would be helpful!
thanks
xxx
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madhou... |
madhou... |
madhou... |
ETP New - Name the Journal - We've named it!
A name for the new journal has been selected:
Epilepsy Journal: Insights and Strategies
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 defbase New - Epilepsy and Illegal drugs - experiences
Hi there everyone. Firstly I am in no way linked to the medical profession, and have no formal medical training or experience. I just thought...
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 schesney New - Ativan side effects
Hello. I am trying to find out if anyone else has had to deal with my problem. My daughter is almost 9. She has complex-partial seizures that can progress to tonic-clonic ones if she is sick, the weather is bad, she doesn't get enough sleep, etc... ...
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lzyolari New - photosensitivity and noise sensitivity
Any adult with epilepsy out there have the experience of having photosensitivity and noise sensitivity?
I have had epilepsy for 35 + yrs and this past June 2 months before giving birth I started having photosensitivity and noise sensitivit which triggered...
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 acswenson New - Discrimination in the workforce
I'm currently working in a small store until I graduate in May with my degree. However, the other day I was not feeling well and had already had three seizures in two weeks and was preparing for another one. When I went into work, my boss called in someone...
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 varian93 New - Tongue Biting
I most always bite my tongue very severely while having a seizure. I then saw some posts on here of other people who have the same problem. I had found a product that helps my tongue heal much much faster. The product is Aloe Vera juice or gel, either one....
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 madhat... New - Taking Generic Levetiracetam (Keppra?)
Anyone taking the new generic levetiracetam (Keppra)? For those who don't know the pharmaceutical company Mylan came out with it early November. I was just wondering if anyone taking it has any qualms or comments because I'm starting my regiment on Monday.
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blueal... |
schesney New - Ativan side effects
Hello. I am trying to find out if anyone else has had to deal with my problem. My daughter is almost 9. She has complex-partial seizures that can progress to tonic-clonic ones if she is sick, the weather is bad, she doesn't get enough sleep, etc... ...
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 ROCKNROLL New - COMPLETELY POSITIVE SPIRITUAL FORUM........PLEASE HONOR THIS FORUM!
DO YOU HAVE EPILEPSY? I DO! AND THE ALL CAPS? PLEASE UNDERSTAND THAT I AM VISUALLY IMPAIRED AND I NEED THE UNIFORMITY OF ALL CAPS. I AM NEVER OR WOULD I EVER YELL AT ANYONE! THIS IS MY FIRST SUGGESTION AND I WILL EXPLAIN THE REST BELOW! THANKS!
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madhat... New - Your Way of Dealing With Anxiety
Just curious and wanted to start a dialogue about the wonderful task of juggling epilepsy and anxiety or anxiety disorders. I'm interested in whatever input you have about your related experiences, especially outlets you may have or alternative therapies.
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 amyoon New - losing my hair!
Hello,
Is anyone else experiencing drastic hair loss from either keppra or lamictal? This is stressing me out incredibly which is probably making it worse. Does anyone have suggestions? Help!
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 Blondie46 New - Keppra has failed-now on to Depakote or Devailpoex(generic)
My 12 year old daughter has been on Keppra for 2 months now. Her starting dose was 500mg 2x daily.
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bykerb... |
annoyed1 New - Weird tastes, but definite sight.
I have seizure activity when I am asleep despite what my doctor says....I also taste blood during the day and it is so frustrating because I cannot figure out what or where it comes from. Well now, I have a new development that is not a hallucination.I see...
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M_Johnson |
 1never... |
 Kesin_... New - Sleep Apnea due to Low BP?
One additional question that's a tad wonky:
I understand sleep apnea to essentially be a disturbed oxygen flow to the brain during sleep. Could it be possible to have sleep apnea due to very low blood pressure? I'm a runner/martial artist and my resting...
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shreve68 New - New here and looking for some answers...
Hi Everyone,
I am really glad I foundboard. My 13 year old son started having seizures at 5 days old. Withthe first seizures he would actually stop breathing. He was on a number of different medications until he was about 3 years old. During that time...
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webo |